Dying For Beginners

Life is crazy. My brain is crazy. Everything is crazy. I am assured that if I was ‘normal’ (stupid word) and there wasn’t all this painkiller and stuff cruising through my brain, that things would not seem so overwhelming. Meanwhile, I have a new cordless mouse and cordless keyboard which makes typing so much easier that I feel like I must write a blog.

 Where am I? In pain, pain controlled, at home seeing daily nurses and the team from Mount Olivet. Having some breathing difficulties, which worry me quite a bit. Planning a trip to Mackay.

Yes, in the middle in the craziness, we are planning a trip to Mackay, then on the way back we are going to Mary Fairy Mum’s St Patrick Fairy Party in Bauple! So we are doing a major military operation to make sure that someone is able and available to provide me with the right drugs at the right time.

But we are looking forward to this trip to Mackay – a chance to maybe unwind a little and stop being so manic.

Mama has also been down for the past couple of weeks and that is great – she makes sure we eat well, keeps things clean and is just generally wonderful. I love having her around. Not just the practical stuff – but the love and support stuff as well.

So not much has actually changed – how am I feeling? I don’t know. I really don’t. I’m a bit too manic to really be emoting. Maybe a bit scared. Maybe a lot scared.

I am achieving things while in manic mode though. God bless Maryanne and Angelo – I got a will and Power of Attorney done today. Just need to do my Advanced Health Directive now. It helps me feel a bit more in control.

I am looking forward to the Leukaemia Foundation’s World Greatest Shave next weekend. We’ll be in Mackay so we’ll go to a function somewhere in Mackay – if you haven’t sponsored me yet make sure you do (you can do it online – very simple!) at my Sponsorship Page! So please do – they are a marvelous organisation who have done so much for me.

I hope you are well. Health-wise I might not be well, but I am surrounded by the four Fs again – faith, family, friends and food (yes, I am vaguely interested in food again!).

So may God bless you, may you be surrounded by family and friends and may you eat dessert before dinner every now and again. (Ooh, that reminds me, Jason bought me a Gaytime earlier. I might go get it out of the freezer. Yum.)

Thank you for your support.

 With love (and a new mouse and keyboard!)

Jessie xoxox

You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.